I’m too excited about my breakfast and newly recovered fondness for food to stay in bed any longer. What I would sketch right now, if I were an artist, to give you a thousand words at a glance, is this.
My husband is in his robe, wearing the bed-head that makes me smile, his feet up on an ottoman, breakfast smoothie and iPad in hand. I’m at the dining table right behind him, my stout little black laptop (“It’s a BlackBook!”, they excitedly once informed at the Genius Bar), my organic golden-yolk egg-and-parsley breakfast sandwich, my mango smoothie, and my tea next to me, trying (somewhat successfully), to respect the morning quiet he prefers. My senses of taste and smell have stirred to life, and the numbing neuropathy and vibrating, face-plant-inducing weakness have receded enough to permit small adventures in the kitchen. My brain is chatty, animated, in high gear.
I realize that nobody cares all that much about what I’m eating or what it looks like in here this morning. But that’s not at all what this is about. They tell me that those who write or in some other way communicate and document their traumatic experiences as they emerge from them recover more quickly, particularly when they sense somebody is paying attention, so stay with me if you have a moment. And because key elements of it are already logged here, it’s primarily the roller-coaster euphoria that sometimes now emerges that I want to share today, my first steps coming out of the many-week-long, frightening, miserably painful stupor.
Also on the table next to me, I have a large bag of fresh parsley, which I’m stripping from its stalks to zip up into a little bag and refrigerate for convenience. (If you’re not a fan of parsley, Google its medicinal properties; you may quickly become one.) And invisible nor easily represented in a sketch, but equally real in my mind, are vibrant images of this meal making its way into my calves and thighs, ones that curve and move and function again, to carry me beyond the end of my building hallway and up a flight of stairs.
This post is about having turned a bend on a very narrow, hair-pin-turn-riddled, steep road scratched into the dark edge of a craggy mountain, and seeing fresh green in the valley ahead. It’s about feeling like a human being again. It’s about the million tiny things we take for granted every day until we lose them—waking up without wondering if it’s sandpaper you’ve slept on instead of soft cotton sheets. Waking up knowing you can go get your own medication instead of waking your partner to do it. Waking up hungry. Being conscious that your skin and bone marrow are no longer on fire. It’s about a feeling of confidence that I will not forever be prisoner to a poisoned and near-paralyzed body. It’s about a shopping trip for spring clothes with a friend who, like me, freed from an office cubicle by day, happens to be an outstanding and patient wheelchair navigator. It’s about waking up with a million want-to-do things in mind, things like a series of dinners to cook for the lovely human beings who have faithfully brought fresh-squeezed juices and home-made soups and smoothies and bowls of rice, or, for my husband, homemade chocolate chip cookies, beef stew and other heartier fare. Those who now, with my return to hunger, are happy to provide made-to-request roast chicken and mashed potatoes (thanks Mom!). My kitchen needs re-baptizing, and I’m eager to follow through just as soon as my legs will hold me solidly enough.
These words are an attempt to roughly translate images forever imprinted in my mind into language I can return to in the future.
An aside: it is, as always, a happy little hour I’m having with my lovely outdated little BlackBook. I’m currently reading Nahlah Ayed’s A Thousand Farewells, and it was a lovely little moment of kinship I felt with her the other day watching a YouTube clip of a speech she delivered a few years ago. She was using not a paper-weight sleek new MacBook, but rather a BlackBook identical to mine.
I miss writing, and working. The idea of getting back to it in the months to come is a lovely thought. I miss being busy, efficient, independent, creative, free, moving quickly to accomplish what it is I’ve set out to accomplish. I have, however, also resolved to slow down—there is immense value in the quiet spaces.
One more recent image for the record: I’m reclining in my usual spot on the giant jet-like sofa-turned-daybed in our living room. We have just returned from the airport with my adult son, who is in town for a two-and-a-half day visit, a couple of nearly unbroken days with his mom, his siblings, and his stepdad. I am on the couch though, not running around prepping food, serving wine, all of us busy and free to come and go at will. This time, however temporarily, the roles are somewhat reversed from the usual parent-child roles. We are together to support and cheer each other on. To add to the intensity of the setting, I am wheelchair-bound beyond our suite, and we discover that the building elevators are down. We won’t be getting out to dinner as planned. Will the kids survive this kind of compressed family time within these four walls? (And please, no fire alarms!)
Hearing my son’s hearty laugh though, I’m suddenly moved out of the heartbreak I’ve been conscious of in recent months. Pure, unadulterated pleasure reigns. He suggests we order take-out Indian food, for its glorious richness, as a remedy for wobbly, emaciated legs. I suddenly have an intense appetite, and it is so, so much fun. It is one of many such hours on this most rare and precious of weekends. We talk about cancer. We talk about their pets, their busy lives, their futures—my daughter’s business, my son’s and his partner’s corporate grind, my other son’s work as a Resident at Stanford. I’m so proud of them. Grandparents drop in for a visit. We view childhood movies my husband has put together for us, both technologically updated (credit to my brother) Super 8 clips from my childhood many years ago, and newer ones of my own still-young family in the 80s and 90s. We get to know each other in ways we hadn’t known, or had forgotten. We sing the crazy songs of that era, and marvel at the adolescent ability to remember foolish Boy Band and Spice Girl lyrics, dance moves, and movie sound tracks. We mourn and soothe each other, but we also laugh ourselves silly. I immerse myself in love and laughter; endorphins reign.